Wednesday, December 5, 2007

NF1-Neurofibromatosis type 1

Neurofibromatosis type 1 is a hereditary disorder, that affects 1 in 4,000 people. A member of my family was born with it, a very bad case of it. It involves the nervous system, the skin and bones of the body. The most distinctive features of Neurofibromatosis, is brown spots called 'cafe au-lait' spots. NF1 can also affect nerves throughout the body, including in the brain and spinal cord. There can also be pink, raised spots called 'button-holes'. These marks are found all over the body.

My sibling has thousands of all different kinds of markings all over the body. Most of them are on the torso. They say in some occasions, a person with NF1 can go mental because it affects the brain, however, my sibling is fine at the moment anyway! Although there is a few things she cannot do because of the disorder, including taking some medications, being out in the sun, and being in the water too long.

Anyway, maybe someone out there has markings like this, and has never done anything about it, so maybe you should contact your doctor, as this is a disorder that must be monitored.


Check out this site for more info on Neurofibromatosis type 1 ...Click Here

Here is a picture of the body, and how NF1 can affect it:
















This picture was taken from NF1.org

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